Have your say on Epilepsy in Australia

A Senate Inquiry into Epilepsy in Australia has just been announced, and they are asking people to share their experiences, challenges, and ideas.

If you or someone you care about lives with epilepsy, your voice can help shape better support and services by writing a letter or submission.

This inquiry is a chance to tell decision-makers what needs to change.

Submissions close 15 May 2026

The issues under review    (Link Epilepsy in Australia – Parliament of Australia)

  • barriers to diagnosis and access to appropriate treatment options, including the impact of factors such as:
    • drug-resistant epilepsy and its psychosocial and economic impacts on patients and the community;
    • the level of community awareness and understanding of epilepsy and treatment options;
    • barriers to access support services after diagnosis, including the National Disability and Insurance Scheme;
    • the adequacy of Commonwealth funding for research into epilepsy; and
    • any other related matters.

    How to make a submission  (Link Making a submission – Parliament of Australia)
    You don’t need to be an expert, just share:
    • Your personal experience
    • The challenges you’ve faced
    • What would make things better

    Start with a brief introduction about yourself, address one or more of the issues, you don’t need to cover everything. Be short and clear (usually 4–5 pages or less). Include ideas or suggestions for improving support and services. 

    Provide your name, address and contact details, make sure they are not in the body of the main letter or submission. If you do not want your letter or submission published, state this clearly on the front page and the reason why.  

    Not comfortable writing?
    You can use the dictation feature on your phone or computer to speak your story and convert it to text. Follow the links for more information 

    Your story matters. The more voices they hear, the stronger the case for change.

    Learn more about the inquiry and how to make a submission on the Parliament of Australia website. ( Link Epilepsy in Australia – Parliament of Australia)