PROVISIONAL PROGRAMME IN-PROGRESS

Join rare disorders researchers and stakeholders from around Aotearoa New Zealand and the world for a two-day forum to connect and strengthen our domestic and international research networks.

We are assembling a group of presenters which will include:

• Farah Lamiable-Oulaidi, Senior Scientist, Ferrier Research Institute, Victoria University of Wellington
• Miriam Rodrigues, Neurogenetic Research Lead, Neurogenetics Research Group - Health New Zealand Auckland & University of Auckland
• Kylie Drake, Scientific Officer, Molecular Pathology Scientific Lead, Canterbury Health Laboratories, Te Whatu Ora
• Professor Gareth Baynham, Medical Director, Rare Care Centre, Clinical Centre of Expertise for Rare and Undiagnosed Disease, Perth Children’s Hospital
• Victoria Hedley, National Mirror Group Lead, European Rare Diseases Research Alliance, Rare Disease Policy Manager at Newcastle University and co-lead of the Newcastle Centre for Rare Disease
• Chris Higgins, Chief Executive, Rare Disorders NZ
• Professor Louise Bicknell, PI - Rare Disorder Genetics Lab, Co-Director, Genetics Otago, Department of Biochemistry | Te Tari Matu Koiora, University of Otago
• Professor Phillip Wilcox, Kaikokiri Maori, Genetics Teaching Programme, Kaiawhina Maori, Genetics Teaching Programme, University of Otago

Panelists for discussion topics will include:

• Dr Katherine Neas, National Clinical Director, Genetic Health Service NZ
• Professor Hugh Dawkins, Professor - Adjunct to Medical School, University of Notre Dame Australia, Sydney, representing the Perth  Rare Care Comprehensive Centre

If you’d like to present, be on a discussion panel or simply attend and network please Register here.

The venue will be Christchurch’s Manawa facility

Please see the next page for the forum’s presentation themes and programme outline